Research and Resources

COVID-19 Resources

State Unable To Meet Federal Rule To Do Routine Tests Of Nursing Home Staff

Click here to view the State Hygienic Lab letter on nursing homes.

COVID-19 Cases on the Rise in Central Iowa

Increased Concern for Long Term Care Residents

Our country has seen an increase in COVID-19 cases and hospitalizations over the past several weeks. The United States has experienced the highest case counts of the pandemic, over 40,000 cases in the past two days. Central Iowa is now following the same trend. Over the past seven days, our positive COVID-19 cases are on the rise again. Since the beginning of June, Polk County has been averaging around 50-55 cases a day. The seven-day trend has shown an increase of 20% of new cases reported in central Iowa. We are seeing community spread of COVID-19 as our community has re-opened.

Click here to view the full memo from the Polk County Health Department.


Fake ADA Face Mask Exemption Cards and Flyers — COVID scam alert

There is a growing trend for people to invoke the Americans with Disabilities Act (ADA) in not complying with mandatory face masking policies at the recommendation of public health officials. Some people are carrying exemption cards claiming to be issued by the US Department of Justice. This is a problematic misuse of the ADA to bypass public health regulations.

For more information and technical assistance about the ADA, please contact the ADA Information Line at 800-514-0301 (voice) and 800-514-0383 (TTY).

Click here for info and updates.


Iowa Low-Income Home Energy Assistance Program (LIHEAP)

LIHEAPApplication Period Extended to June 30, 2020.

Funding for the Low-Income Home Energy Assistance Program (LIHEAP) has been provided under the recent Cares Act passed by Congress and the deadline for individuals to apply has been extended to June 30, 2020.

Iowa families are facing many challenges as they cope with the COVID-19 virus. Some have lost jobs or had their hours of employment reduced. These circumstances could lead to difficulty in paying their utility bill.

You can find a link to information about your local community action agency by going to the Iowa Department of Human Rights website at or by dialing 2-1-1.

Podcast: Iowans on the front lines battling a global pandemic 

“Nothing defines ESSENTIAL quite like a pandemic.” Direct care workers and child care workers are in the thick of the pandemic right now.

Listen to this podcast, A Deeper Dive, from the Child and Family Policy Center about Iowans on the front lines battling COVID-19 with Iowa CareGivers.

COVID-19: A wake-up call for Iowa nursing home care

The coronavirus has brought important attention to nursing homes and the challenges they face in keeping residents safe and well. Thousands of journalists and citizens from across the country have flooded traditional and social media with reporting and commentary.

Click here to read The Gazette Guest Columnist article by John and Terri Hale.

EveryStep to Open Dedicated Unit for Hospice Patients Who Have COVID-19 - April 27

The EveryStep Hospice COVID-19 Unit is located in the Glazer-Burt Wing at EveryStep’s Bright Kavanagh Center, 3000 Easton Blvd., in Des Moines. The six-room, fully-contained unit will be exclusively available to hospice patients with COVID-19 who need 24/7 care. 

If the organizations or programs you work with serve people who are facing end-of-life illness, are diagnosed with COVID-19 and need 24/7 care, the EveryStep Hospice COVID-19 Unit offers a safe, home-like option in a beautiful setting.

Click here to read more.

Direct Care Workers and Employers Share COVID-19 Concerns


COVID-19 Check In (July 2020)

Direct Care Worker Survey Results (as of 8.18.20)

Employer Survey Results (as of 8.18.20)

COVID Follow Up

Direct Care Worker Survey Results (as of 6.15.20)

Employer Survey Results (as of 6.15.20)

COVID-19 Testing and Support

DCW Survey Results (as of 5.20.20)

Employer Survey Results (as of 5.20.20)

Childcare Challenges During COVID-19

Direct Care Worker Survey Results

Employer Survey Results

Personal Protective Equipment (PPE) Concerns and Other Fears

Direct Care Worker Survey Results

Employer Survey Results



Iowa CareGivers’ (ICs) goal during the COVID-19 pandemic is to fight for the safety and well-being of those on the front lines of direct care and the Iowans of all ages and abilities that you are doing your best to protect.  We’ve reserved this page of our website to provide you with up to date and reliable information.

We also know you are dealing with levels of high anxiety and fear and we’ve created a positive space for you and your supporters to engage in conversation and provide support to each other.

Please join in our Caregiver Conversations on our facebook page, we'd love to hear from you!


Nursing Assistants/Home Care/Hospice Aides, Direct Support Professionals, and Other Direct Care Workers (DCWs) Are Among Those Who Are the Best Defense in Fighting the Spread of COVID-19.

Click here to read Iowa CareGivers’ Response to COVID-19.



With the current information overload regarding the Coronavirus (COVID-19) we urge you to seek out reliable resources!!  It may be tempting to call your nurse friend to ask for advice, but when public health experts are releasing updated information and guidelines so often… it is important to stay abreast of any updates and take their recommendations seriously in order to adequately protect yourself, your loved ones, your communities, and the people you may provide care or assistance for.  You can help by sharing the resources below to ensure people are receiving more consistent and accurate information.


Additional Resource Links



 Health care workers (paid and volunteer) in all settings from hospitals and clinics to nursing homes and hospices have greater exposure to COVID-19 and are therefore at more risk of contracting the virus than most.  If those on the frontlines contract the virus those they care for are also at risk.  It is critical that health care workers:

  • Receive preference to testing for COVID-19.
  • Have first choice to the masks, gloves, and other personal protective equipment needed.
  • Have access to health care coverage for themselves and their families.  Ten percent (10%) of direct care workers, who earn a median hourly wage of $13.80, have no health care coverage from any source.
  • Receive guaranteed sick pay so they are not inclined to work when sick out of financial necessity.
  • Are assured that the costs of their preferred child care provider are covered when schools are shut down while they are called to service.

Health care workers are the selfless heroes who have the compassion and capacity to care for those who are ill while working to contain the spread until the threat of COVID-19 passes.  It is vitally important that these essential members of our workforce receive the support they need from all of us during this time and that policy-makers provide the needed resources.

Direct Care Workers May Face Breaking Point

Direct-care workers were already under stress due to low wages and, for most, lack of health insurance. Now, the shortage of personal protective equipment may bring some to a breaking point, guest columnist Di Findley of Iowa CareGivers writes.

Click here to read the article.

Click here to read The Daily Dispatch in its entirety courtesy of Iowa Capital Dispatch


Emergency Department "Health Passport"

The Ohio Association of County Boards of Developmental Disabilities created the attached form for individuals and families to use when seeking treatment for COVID-19 symptoms. People can use this form to assist health care professionals with the care and treatment of patients with intellectual and developmental disabilities in these extreme circumstances.

Click here to print out legal guidance and give it to the hospital along with the "passport" form. Or add a page to the "passport" form that says something along the lines of:

This information is not a waiver of any civil rights for this patient under federal and state law including but not limited to the Section 1557 of the Affordable Care Act and Section 504 of the Rehabilitation Act which prohibit discrimination on the basis of disability in health programs or activities.

Click here to download form.


When hospitals become strained and contaminated, home-based care is more important than ever

Caregivers could be among the workers who provide oxygen, nutrition, medication and support to people in their homes.

Click here to read The Des Moines Register's Editorial.


Advocating for Child Care for Health Care Workers

New study says 20% of Iowa health care workers have to quit to care for their children.
Click here to read the article on


Important Information For Those In Direct Care Regarding COVID-19

Important Information For Those In Direct Care Regarding COVID-19.


We Are Advocating Relentlessly for Direct Care Workers

Iowa CareGivers is advocating relentlessly for PPE, testing and childcare assistance for direct care workers in order to ensure the safety of those served, their own families and themselves.

Click below to see recent coverage:

We Are Iowa:

Watch the KCCI video
Read the KCCI article